Personal and Family Childhood Predictors of Functional Outcomes of Adolescents With Autism Spectrum Disorder

Referencias bibliográficas

• Abidin, R. R. (1995). Parenting stress index: Professional manual. (3rd ed.). Psychological Assessment Resources.
• Ameis, S.H., Haltigan, J.D., Lyon, R.E., Sawyer, A., Mirenda, P., Kerns, C.M., Smith, I.M., Vaillancourt, T., Volden, J., Waddell, C., Zwaigenbaum, L., Bennett, T., Duku, E., Elsabbagh, M., Georgiades, S., Ungar, W.J., Zaidman-Zait, A., Lai, M.-C., Szatmari, P., & Pathways in ASD Study Team. (2022). Middle-childhood executive functioning mediates associations between early-childhood autism symptoms and adolescent mental health, academic and functional outcomes in autistic children. The Journal of Child Psychology and Psychiatry, 63(5), 553- 562. https://doi.org/10.1111/jcpp.13493
• American Psychiatric Association (APA) (2013). Diagnostic and statistical manual of mental disorders. (5th ed.). Author
• Andersen, P. N., Hovik, K. T., Skogli, E. W., & Øie, M. G. (2017). Severity of autism symptoms and degree of attentional difficulties predicts emotional and behavioral problems in children with high-functioning autism; a two-year follow-up study. Frontiers in Psychology, 8, Article e2004. https://doi.org/10.3389/fpsyg.2017.02004
• Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., Kurzius-Spencer, M., Zahorodny, W., Robinson Rosenberg, C., White, T., Durkin, M. S., Imm, P., Nikolaou, L., YearginAllsopp, M., Lee, L. C., Harrington, R., Lopez, M., Fitzgerald, R. T., Hewitt, A., Pettygrove, S., … Dowling, N. F. (2018). Prevalence of Autism Spectrum Disorder among children aged 8 years autism and developmental disabilities monitoring network, 11 Sites, United States, 2014. Morbidity and Mortality Weekly Report. Surveillance Summaries, 67(6), 1–23. https://doi.org/10.15585/mmwr.ss6706a1
• Baron-Cohen, S. (2000). Theory of mind and autism: A review. International Review of Research in Mental Retardation, 23, 169–184. https://doi.org/10.1016/S0074-7750(00)80010-5
• Bellón-Saameño, J. A., Delgado-Sánchez, A., Luna del Castillo, J. D., & LardelliClaret, P. (1996). Validez y fiabilidad del Cuestionario de Apoyo Social Funcional Duke-UNC-11 [Validity and reliability of the Duke-UNC-11 Functional Social Support]. Atención Primaria, 18(4), 153-163. https://doi.org/10.1016/S0074-7750(00)80010-5
• Bennett, T. A., Szatmari, P., Bryson, S., Duku, E., Vaccarella, L., & Tuff, L. (2013). Theory of mind, language and adaptive functioning in ASD: a neuroconstructivist perspective. Journal of the Canadian Academy of Child and Adolescent Psychiatry, 22(1), 13–19. https://doi.org/10.3389/ fpsyt.2019.00753
• Berenguer, C., Miranda, A., Colomer, C., Baixauli, I., & Rosello, B. (2018). Contribution of Theory of Mind, executive functioning, and pragmatics to socialization behaviors of children with high functioning autism. Journal of Autism and Developmental Disorders, 48(2), 430- 441. https://doi.org/10.1007/s10803-017-3349-0
• Broadhead, W. E., Gehlbach, S. H., de Gruy, F. V., & Kaplan, B. H. (1988). The Duke-UNC Functional Social Support Questionnaire. Measurement of social support in family medicine patients. Medical Care, 26(7), 709–723. https://doi.org/10.1097/00005650-198807000-00006
• Carver C. S. (1997). You want to measure coping but your protocol’s too long: consider the Brief COPE. International Journal of Behavioral Medicine, 4(1), 92–100. https://doi.org/10.1207/s15327558ijbm0401_6
• Demetriou, E.A., DeMayo, M., & Guastella, A.J. (2019). Executive function in autism apectrum disorder: history, theoretical models, empirical findings, and potential as an endophenotype. Frontiers in Psychiatry, 10, Article e753. https://doi.org/10.3389/ fpsyt.2019.00753
• Diaz-Herrero, A., Brito de la Nuez, A. G., López Pina, J. A., Pérez-López, J., & Martínez-Fuentes, M. T. (2010). Estructura factorial y consistencia interna de la versión española del Parenting Stress Index-Short Form [Factor structure and internal consistency of the Spanish version of Parenting Stress Index-Short Form]. Psicothema, 22(4), 1033-1038.
• Eussen, M. L., Louwerse, A., Herba, C. M., Van Gool, A. R., Verheij, F., Verhulst, F. C., & Greaves-Lord, K. (2015). Childhood facial recognition predicts adolescent symptom severity in autism spectrumd. Autism Research, 8(3), 261–271. https://doi.org/10.1002/aur.1443
• Evangelou, M., Taggart, B., Sylva, K., Melhuish, E., Sammons, P., & SirajBlatchford, I. (2008). What makes a successful transition from Primary to Secondary school? Findings from the effective Pre-School, Primary and Secondary Education (EPPSE 3-14) Project (research report DCSF-RR019). Institute of Education, University of London.
• Fombonne, E., MacFarlane, H., & Salem, A.C. (2021). Epidemiological surveys of ASD: advances and remaining challenges. Journal of Autism and Developmental Disorders, 51(7), 4271-4290. https://doi.org/10.1007/s10803-021-05005-9
• Fuentes, J., Basurko, A., Isasa, I., Galende, I., Muguerza, M. D., GarcíaPrimo, P., García, J., Fernández-Álvarez, C. J., Canal-Bedia, R., & Posada de la Paz, M. (2021). The ASDEU autism prevalence study in Northern Spain. European Child & Adolescent Psychiatry, 30(4), 579– 589. https://doi.org/10.1007/s00787-020-01539-y
• Gioia, G. A., Isquith, P. K., Guy, S. C., & Kenworthy, L. (2000). Test review: Behavior Rating Inventory of Executive Function. Child Neuropsychology, 6, 235–238. https://doi.org/10.1076/chin.6.3.235.3152
• Goldin, R. L., Matson, J. L., Beighley, J. S., & Jang, J. (2014). Autism spectrum disorder severity as a predictor of Battelle Developmental Inventory Second Edition (BDI-2). Scores in toddlers. Developmental Neurorehabilitation, 17(1), 39–43. https://doi.org/10.3109/17518423.2013.839585
• Goodman, R. (1997). The Strengths and Difficulties Questionnaire: A research note. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 38(5), 581–586. https://doi.org/10.1111/j.1469-7610.1997.tb01545.x
• Hervás A. (2022). Género femenino y autismo: infra detección y mis diagnósticos [Female gender and autism: infra detection and misdiagnoses]. Medicina, 82(1), 37-42.
• Hollocks, M.J., Jones, C.R., Pickles, A., Baird ,G., Happé, F., Charman, T., & Simonoff, E. (2014). The association between social cognition and executive functioning and symptoms of anxiety and depression in adolescents with Autism Spectrum Disorders. Autism Research. 7(2), 216-28. https://doi.org/10.1002/aur.1361
• Hutchins, T.L., Prelock, P.A., & Bonazinga-Bouyea, L. (2014). Technical manual for the theory of mind inventory and theory of mind task battery. Retrieved from https://www.theoryofmindinventory.com/
• Hutchison, S.M., Müller, U., & Iarocci, G. (2020). Parent reports of executive function associated with functional communication and conversational skills among school age children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 50 (6), 2019-2029. https://doi.org/10.1007/s10803-019-03958-6
• Jones, C. R. G., Simonoff, E., Baird, G., Pickles, A., Marsden, A. J. S., Tregay, J., & Charman, T. (2018). The association between theory of mind, executive function, and the symptoms of autism spectrum disorder. Autism Research, 11(1), 95–109. https://dx.doi.org/10.1002/aur.1873
• Kaufman, A. S., & Kaufman, N. I. (2000). Test breve de inteligencia de Kauffman [Kauffman brief intelligence Test]. Pearson.
• Kenny, L., Cribb, S., & Pellicano, E. (2019). Childhood executive function predicts later autistic features and adaptive behavior in young autistic people: A 12-year prospective study. Journal of Abnormal Child Psychology, 47(6), 1089-1099. https://doi.org/10.1007/s10802-018-0493-8
• Korkman, M., Kirk, U., & Kemp, S. (2007). NEPSY-II Batería neuropsicológica infantil [NEPSY-II. A developmental neuropsychological assessment]. Pearson.
• Luque Salas, B., Yañez Rodríguez, V., Tabernero Urbieta, C., Cuadrado, E. (2017). The role of coping strategies and self-efficacy as predictors of life satisfaction in a sample of parents of children with autism spectrum disorder. Psicothema, 29(1), 55-60. https://doi.org/10.7334/psicothema2016.96
• Makin, C., Hill, V., & Pellicano, E. (2017). The Primary-to-Secondary school transition for children on the autism spectrum: A multiinformant mixed-methods study. Autism & Developmental Language Impairments, 2, 1-18. https://doi.org/10.1177/2396941516684834
• Mira, A., Berenguer, C., Rosello, B., Baixauli ,I., & Miranda A. (2022). Exploring the profiles of children with autism spectrum disorder: association with family factors. International Journal of Developmental Disabilities, 68(1), 14-24. https://doi.org/10.1080/20473869.2019.1679459
• Miranda, A., Mira, A., Berenguer, C., Rosello, B., & Baixauli, I. (2019). Parenting stress in mothers of children with autism without intellectual disability. Mediation of behavioral problems and coping strategies. Frontiers in Psychology, 10, Article e464. https://doi.org/10.3389/fpsyg.2019.00464
• Moran, C., Landero, R., & González, M. T. (2010). Cope-28: Un análisis psicométrico de la versión en español del BRIEF COPE [A psychometric analyis of the Spanish version of BRIEF COPE]. Universitas Psychologica, 9(2), 543-552. https://doi:10.11144/ javeriana.upsy9-2.capv
• Othman, L.B., & Collet-Klingenberg, L. (2017). Theory of mind training in children with autism: relating the shared attention mechanism to the theory of mind mechanism vs understanding beliefs training. Journal of Educational and Developmental Psychology, 7(2), 75-86. https://doi.org/10.1007/s10803-010-1121-9
• Ozonoff, S. (1995). Executive functions in autism. In E. Schopler and G. Mesibov (Eds.). Learning and cognition in autism (pp.199-219). Plenum Press.
• Pasqualotto, A., Mazzoni, N., Bentenuto, A., Mulè, A., Benso, F., & Venuti, P. (2021). Effects of cognitive training programs on executive function in children and adolescents with autism spectrum disorder: A systematic review. Brain Sciences, 11(10), Article e1280. https://doi.org/10.3390/brainsci11101280
• Pellicano E. (2013). Testing the predictive power of cognitive atypicalities in autistic children: evidence from a 3-year follow-up study. Autism Research, 6(4), 258–267. https://doi.org/10.1002/aur.1286
• Pickles, A., McCauley, J. B., Pepa, L. A., Huerta, M., & Lord, C. (2020). The adult outcome of children referred for autism: typology and prediction from childhood. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 61(7), 760–767. https://doi.org/10.1111/jcpp.13180
• Pugliese, C. E., Anthony, L. G., Strang, J. F., Dudley, K., Wallace, G. L., Naiman, D. Q., & Kenworthy, L. (2016). Longitudinal examination of adaptive behavior in autism spectrum disorders: influence of executive function. Journal of Autism and Developmental Disorders, 46(2), 467– 477. https://doi.org/10.1007/s10803-015-2584-5
• Pugliese, C.E., Wallace, G.S., Gutermuth, L., & Kenworthy , L. (2020). Understanding executive function challenges in autism. In S.W. White, B.M. Maddox and C.A. Mazefsky (Eds.). The Oxford handbook of autism and co-occurring psychiatric conditions (pp.305-326). Oxford Library of Psychology Series.
• Pujals, E., Batlle, S., Camprodon, E., Pujals, S., Estrada, X., Aceña, M., Petrizan, A., Duñó, L., Martí, J., Martin, L. M., & Pérez-Solá, V. (2016). Brief Report: Translation and adaptation of The Theory of Mind Inventory to Spanish. Journal of Autism and Developmental Disorders, 46(2), 685–690. https://doi.org/10.1007/s10803-015-2576-5
• Rodriguez-Hernández, P.J.; Betancort, M.; Ramírez-Santana, G.M.; García, R.; Sanz-Alvarez, E.J., & De las Cuevas Castresana, C. (2014). Puntos de corte de la versión española del Cuestionario de Cualidades y Dificultades (SDQ) [Cutoff scores of the Spanish version of The Strenghts and Difficulties Questionnaire (SDQ)]. Revista de Psiquiatría Infanto-Juvenil, 3, 23-29.
• Rojas-Torres, L.P., Alonso-Esteban, Y., & Alcantud-Marín, F. (2020). Early intervention with parents of children with autism spectrum disorders: A review of programs. Children, 7(12), Article e294. https://doi.org:/10.3390/children7120294
• Rosello B, Berenguer C, Baixauli I, Colomer C, Miranda A. (2018). ADHD symptoms and learning behaviors symptoms in children with ASD without intellectual disability. A mediation analysis of executive functions. PLoS ONE, 13(11), Article 0207286. https://doi.org/10.1371/journal. pone.020728
• Rosello, R., Berenguer, C., Martinez-Raga, J., Miranda, A., & Cortese, S. (2021). Subgroups of children with autism spectrum disorder without intellectual disability: A longitudinal examination of executive and socio-adaptive behaviors in adolescence. Journal of Clinical Medicine, 10(10), 2220. https://doi.org/10.3390/jcm10102220
• Rutter, M., Le Couteur, A., & Lord, C. (2006). Entrevista clínica para el diagnóstico del autismo-revisada [Autism diagnostic interviewrevised]. TEA Ediciones.
• Rutter, M., Bailey, A., & Lord, C. (2019). Cuestionario de comunicación social [Social communication questionnaire]. TEA Ediciones.
• Schwartzman, J.M., Millan, M.E., Uljarevic, M., & Gngoux, G.W. (2022). Resilience intervention for parents of children with autism : findings from a randomized controlled trial of The AMOR Method. Journal of Autim and Developmental Disorder, 52(2), 738-757. https://doi.org/10.1007/s10803-021-04977-y
• Sparrow, S. S., Cicchetti, D. V., & Balla, D. (2005). The Vineland II adaptive behavior scales. American Guidance Service.
• St John, T., Dawson, G., & Estes, A. (2018). Brief Report: Executive function as a predictor of academic achievement in school-aged children with ASD. Journal of Autism and Developmental Disorders, 48(1), 276–283. https://doi.org/10.1007/s10803-017-3296-9
• Szatmari, P., Cost, K. T., Duku, E., Bennett, T., Elsabbagh, M., Georgiades, S., Kerns, M., Mirenda, P., Smith, I. M., Ungar, W. J., Vaillancourt, T., Waddell, C., Zaidman-Zait, A., & Zwaigenbaum, L. (2021). Association of child and family attributes with outcomes in children with autism. JAMA Network Open, 4(3), Article e212530. https://doi.org/10.1001/jamanetworkopen.2021.2530
• Tomaszewski, B., Hepburn, S., Blakeley-Smith, A., & Rogers, S. J. (2020). Developmental trajectories of adaptive behavior from toddlerhood to middle childhood in autism spectrum disorder. American Journal on Intellectual and Developmental Disabilities, 125(3), 155–169. https://doi.org/10.1352/1944-7558-125.3.155
• Verheij, C., Louwerse, A., van der Ende, J., Eussen, M.L., Van Gool, A.R., Verheij, F., Verhulst, F.C., & Greaves-Lord, K. (2015). The stability of comorbid psychiatric disorders: A 7-year follow up of children with pervasive developmental disorder-Not otherwise specified. Journal of Autism and Developmental Disorders, 45(12), 3939–3948. https://doi.org/10.1007/s10803-015-2592-5
• Vogan, V. M., Leung, R. C., Safar, K., Martinussen, R., Smith, M. L., & Taylor, M. J. (2018). Longitudinal examination of everyday executive functioning in children with ASD: Relations with social, emotional, and behavioral functioning over time. Frontiers in Psychology, 9, Article e1774. https://doi.org/10.3389/fpsyg.2018.01774
• Waizbard-Bartov, E., Ferrer, E., Heath, B., Rogers, S.J., Nordahl, C.W., Solomon, M., & Amaral, D.G. (2022). Identifying autism symptom severity trajectories across childhood. Autism Research, 15(4), 687- 701.https://doi.org/10/1002/aur.2674
• Wechsler, D. (2003). Escala de inteligencia Weschler para niños [Wechsler intelligence scale for children]. TEA Ediciones.
• World Medical Association (2013). World medical association Declaration of Helsinki: Ethical principles for medical research involving human subjects. JAMA, 310(20), 2191–2194. https://doi.org/10.1001/jama.2013.281053
• Yorke, I., White, P., Weston, A., Rafla, M., Charman, T., & Simonoff, E. (2018). The association between emotional and behavioral problems in children with autism spectrum disorder and psychological distress in their parents: A systematic review and meta-analysis. Journal of Autism and Developmental Disorders, 48(10), 3393–3415. https://doi.org/10.1007/s10803-018-3605-y
• Zaidman-Zait, A., Mirenda, P., Szatmari, P., Duku, E., Smith, I. M., Vaillancourt, T., Volden, J., Walldell, C., Bennett, T., Zwaigenbaum, L., Elsabaggh, M., Georgiades, S., Ungar, W.J., & Pathways in ASD Study Team (2018). Profiles of social and coping resources in families of children with autism spectrum disorder: Relations to parent and child outcomes. Journal of Autism and Developmental Disorders, 48(6), 2064– 2076. https://doi.org/10.1007/s10803-018-3498-9